Category Archives: Family

Continuing to live with the uncertainties of spina bifida

It seems like forever since I’ve shared an update about Chance on my blog. I know so many of you care about our boy given all the things he’s been through. Periodically I have tried to share brief updates on facebook, twitter and instagram – but they don’t compare to the update I am long […]

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Look who’s five!

It’s hard to believe it’s been five years since our little guy Jaylen was born. I’ve blinked and now he’s such a big boy…so proud to be five. He’s such a loving, charming, and fun little kid these days. I visited him just before it was time to pick him up from pre-k today and […]

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A new school year…

“If you’re always racing to the next moment, what happens to the moment you’re in? Enjoy the ride.” ~unknown Yes, two weeks into the kids’ school year and I’m just now blogging about it…there’s a shocker for those of you who have been following my blog. I’ve been blogging since before Hope ever began school […]

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Dear Chance

“Who knows where this path will take us but lets go forth hand in hand and promise not to let go because it may lead us somewhere vast and amazing.” ~unknown Dear Chance, It seems like forever since I last updated my blog with updates about you. It’s hard to believe it’s been nearly six […]

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August 21, 2012 - 10:52 am

Holly - I have been reading your blog I came across while on the Internet. I am so sorry that your son has had to go through so many things. I am 18 and have had 49 brain surgeries mostly for shunts. I currently have a pleural shunt that was revised last week. When I read stories like these it makes me hopeful. Hopeful that one say shunts will be perfected. No one will ever have to get them revised and that they will never break(she said hopefully) I am happy that your son is doing better. You are in my prayers.

October 13, 2012 - 12:11 am

Natalia - I’m so happy Chance is doing so well. He is so amazing. Nash has been doing really well too. He also began army crawling and now gets up on all fours so soon hell be crawling. He has done awesome at all his visits. I just like u keep praying my baby boy will walk one day.strengthening We are working on strengthening his lower body muscles. I think of Chance often and pray for you guys. There needs to be so much more on Spinal Bifida. Its not a death sentence. I was so scared when I got the news. It was devastating but u helped me. I did the in utero surgery and its been a crazy year n a half! U r blessed with a sweet smart strong boy! Thank u for sharing ur story.

Help me support Team Spina Bifida + a FREE photo session giveaway

“I run because I can. When I get tired, I remember those who can’t run, what they’d give to have this simple gift I take for granted, and I run harder for them. I know they’d do the same for me.” ~unknown This past New Year’s eve I recall sharing with you all that I […]

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