Monthly Archives: October 2011

2011 Walk-N-Roll highlights

“Spina Bifida shouldn’t be something scary, sad, foreign, or feared as one would fear a death sentence. And yet every parent who is hears “I’m so sorry -there is something wrong – your baby has Spina Bifida” feels those things. Every pregnant mother who is left with the decision on whether or not to terminate […]

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October 30, 2011 - 7:45 am

Suzanne McKee - Amanda,
In your touching and beautiful photography and honest expression of feelings, you have done so much already for increasing the awareness and beauty of this very special spina bifida community. I have no words to tell you how much it means to me, one of Chance’s privileged nurses,to see the difference you, Chance, and your family have made in such a short time. We don’t always choose what life gives us but we can make it special. “The Big Man” doesn’t waste anything! God bless you and yours always. Suzanne

October 30, 2011 - 12:16 pm

Connie Bristow - Amanda–great job with the walk yesterday. I was proud to be a part of the inaugural Spina Bifida walk. It was fun, even if it was raining, maybe even more because it was raining. You should be proud of yourself. I wanted to let you know my friends that contributed: John, Denise Fisher, Jen & Brian Berry, Ana Alves, Dr. Law, Shandra Crummey. I am glad it was so sucessful. But of course the star was Chance. We all love him!

June 16, 2018 - 7:39 pm

Leah - This brings back memories of our first SB fundraising event. Laurel was about six months old and it was a hot day so we didn’t bother with coats. I spent the day helping SHINE our local SB charity raise money. It was a good day.

2011 Orlando Walk-N-Roll update

We’re just a few days away from Orlando’s 1st annual Walk-N-Roll for Spina Bifida event so I figured I’d take a moment to update you all who might be planning to join us at the event. The event is taking place at Blue Jacket Park in Orlando, Florida on Saturday October 29th, 2011. Registration begins […]

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November 8, 2011 - 6:13 pm

Ella Konopacki - Hi Amanda,

I keep looking at your blog every now and then because I keep wondering how you and your family are doing. Your little fighter has gotten sooo big. He is the most adorable little boy. When was his birthday again? I think I missed to say Happy Birthday, Chance. :)

I love your pictures and how involved you are with Spina Bifida. Does your day have enough hours? ;)

Take care,

November 15, 2011 - 8:07 pm

Ella Konopacki - I just noticed he is not a year yet. Not sure why I thought so. Sorry about that


“There is a strength in vulnerability and exposing your scars to the world.” ~unknown This time last year my life was still amidst quite a bit of uncertainty, fear, and filled with overwhelming moments as we had come so close to giving up on my baby boy. It seems like many more days in the […]

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The past week

“Don’t run through life so fast that you forget not only where you’ve been, but also where you’re going.” ~Nancye Sims Hopefully those of you reading my blog often aren’t in withdrawals. It’s been just over a week and we’ve managed to stay out of the hospital. Yes, it’s reason to celebrate that a lack […]

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As much as I know you all enjoy seeing Chance’s sweet face, I know some of you are missing my newborn photography. Before Chance’s recent surgeries I met with little Dakota’s family to capture some of her newborn moments. She was super sweet and thanks to her grandmother we had some adorable ideas that were […]

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