Monthly Archives: January 2012

Chance’s 2nd spina bifida clinic

“Sometimes not being in control is the most beautiful thing in the world.” ~unknown As I’ve fallen a little complacent in updating my blog lately I’ve had some of you wondering how things are going. Life has been busy. Crazy. And full of…well, life. With Chance going through so many medical moments this past year […]

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February 1, 2012 - 9:42 am

Kimberlee Garver - I am a social worker at a spina bifida clinic in Syracuse NY. I was wondering about the spina bifida redefined ribbon shirt. Where did you get those? I was encouraged by your blog and plan to share it in our spina bifida newsletter. Thanks for sharing.

February 9, 2012 - 7:19 pm

John - Hey! We’re putting on an online live Q&A with Dr. Levitt from Cincinnati Children’s Hospital about fecal incontinence related to spina bifida, on February 22nd, 2012 at 7:00pm ET. If you’d like to participate in the event, you can RSVP here: If you’re interested in hosting the event on your site or blog and would like some more info, please contact me, John Martin at john (at) Thanks!

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