Category Archives: volunteer

Caiden’s little sister

“That which is taken away from those who love the Lord will be added unto them in His own way. While it may not come at the time we desire, the faithful will know that every tear today will eventually be returned a hundredfold with tears of rejoicing and gratitude.” –Elder Joseph B. Wirthlin Just...

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December 22, 2011 - 11:50 pm

Gian Carlo - WOW, is all I can say for now. God bless you and your amazing talents

December 23, 2011 - 12:09 am

ASHLEY & PAUL WILSON - AMANDA- WE BOTH WOULD LIKE TO THANK YOU SO VERY MUCH FOR THESE PRECIOUS PHOTOS OF KAYDENCE. THEY ARE JUST SO BEAUTIFUL AND WE LOVE THE WAY YOU INCLUDED CAIDEN IN EACH AND EVERY ONE OF THEM. YOU ARE THE BEST!!!! THANK YOU AGAIN AMANDA.

December 23, 2011 - 9:27 am

Phyllis - Amanda, they are beautiful!

December 23, 2011 - 11:30 pm

jamie lea - Beautiful pictures and post. I wish i would have known about NILMDTS when my son was stillborn. That is an amazing thing that you do for people.

Mason’s newborn photos

“Vision is the art of seeing what is invisible to others.” ~ John Swift Today I met with Mary & Mason for the first time since they’ve been home from the NICU. Mason who was also born with spina bifida remained in the NICU for a little over a week and is doing remarkable thus...

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August 18, 2011 - 6:52 am

Gretchen - I know I shouldn’t, but I LOVE the curly feet of SB and clubbed foot… reminds me of when my little guy was just a peanut (and I didn’t have the means or resources for fabulous pictures like you take to remember him by!)

Not to worry, before Mary knows it little Mason will be so big and active and thriving that nothing like a little (said with tongue in ckeek) SB will hold him back. These kids are miraculous. Each and every one of them!

Beautiful pictures, once agian, of course Amanda!

August 18, 2011 - 10:48 pm

Nicole Summers - Beautiful, sweet boy. Beautiful pictures!

August 19, 2011 - 6:51 pm

Abigail - These are beautiful! Wonderful job Amanda and what a good looking little Mason.

August 19, 2011 - 7:28 pm

Robin - What a handsome little guy! You did an amazing job on these, his parents will cherish them forever.

August 19, 2011 - 9:11 pm

Gretchen - These are so moving, you did a wonderful job for a very special little boy!

A few more moments with Mason

“If I could give you one thought, it would be to lift someone up. Lift a stranger up–lift her up. I would ask you, mother and father, brother and sister, lovers, mother and daughter, father and son, lift someone. The very idea of lifting someone up will lift you, as well.” — Maya Angelou Over...

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Mason

“I can be changed by what happens to me. But I refuse to be reduced by it.” — Maya Angelou Today was the first time I entered the NICU since Chance was born. Today I met 2 day old Mason for the first time. Mason also has spina bifida. When I arrived he was laying...

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August 3, 2011 - 9:51 pm

Rebecca Lukens - Precious! Beautiful pictures!

August 3, 2011 - 9:52 pm

Hillary Lovell - Your photos made me remember our NICU experience with Zoe so much. I agree…I don’t think anyone can truly understand unless they’ve been down this road before! Great job on the photos. That mom will cherish those forever!!

August 3, 2011 - 9:56 pm

Gian Carlo - This are an amazing collection of powerful documentary images. Is a heart cringing feeling that send shivers to the viewer while warming the heart and feeling and faith and love only a mother can feel. You can feel the love by which this images were taken.

August 3, 2011 - 10:49 pm

Erin Moya - Thank you for these photos, Amanda! I’m so glad these moms have someone like you. It makes me wish I was still in Orlando and able to be a part of this community. I wish I had someone to talk to when I was going through all of it, and I’m glad you’ve been able to help and reach out to so many families facing these new challenges. And, as always, beautiful photos!

August 3, 2011 - 11:45 pm

Ken Frazier - Amanda, I’m Mary’s brother and I just wanted to say this was a beautiful blog and the pictures are very touching. I got to spend a little bit of time with Mason Monday evening several hours after his first surgery. I appreciate the time you’ve taken with my sister and Mason, it has been such an impact for her with the support and information so she (and the rest of us) have a grasp on the challenges and the hope we face. Thank you, Ken

August 4, 2011 - 12:10 am

Nadine - “Lead me by your truth & teach me, for you are the God who saves me. All day long I put my hope in you.” -Psalm 25:5

So very sweet to have captured Mason opening his eyes for his mother for the first time.

August 3, 2011 - 10:27 pm

This Week’s Rundown– Keeping Spina Bifida “Relevant” | Holdin' Out for a Hero - [...] her third child, who was diagnosed with spina bifida. I can now announce happily that Mary’s son, Mason, has entered the world.  He is currently in the Neonatal Intensive Care Unite (NICU), so I ask that we all keep him and [...]

Support Chance in Orlando’s 1st Spina Bifida Walk n Roll

“It’s not how much you accomplish in life that really counts, but how much you give to others. It’s not how high you build your dreams that makes a difference, but how high your faith can climb. It’s not how many goals you reach, but how many lives you touch. It’s not who you know...

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