Category Archives: volunteer

more updates…

I know many of you are waiting to hear the updates on Chance after all the news we’ve shared recently…but I can’t help but pause and instead start by sharing a photo of all three of our babies. This week marked the start of a new school year for the kids. Hope began middle school, […]

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Celebrating Sophie

  “One day, in retrospect, the years of struggle will strike you as the most beautiful.” ~Sigmund Freud This past week I spent a bit of time with Lindsey & Kevin as I joined them to help celebrate the 35th week of her pregnancy with their little girl Sophie. I volunteered a bit of my […]

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July 18, 2013 - 11:16 am

michelle Maynard - What a beautiful family, may God continue to bless their lives. My prayers are with you both.

2012 Spina Bifida awareness campaign

“You can make plans, but the Lord’s purpose will always prevail.” ~Proverbs 19:21 I know I have quite a few people anxious to see some of what I’ve been working on for part of the last month and a half. I’m quite excited to finally share the entire 2012 spina bifida awareness campaign that I’ve […]

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October 23, 2012 - 5:49 am

Rose Lumm - God bless you Amanda Kern for illustrating so beautifully that these children and adults are not defined by a diagnosis. I am so grateful that you are so transparent in the words you use to describe your journey. I choke up looking at the photos as I know so many of these incredible individuals and know many challenges they’ve endured. Thank you for using your incredible talents to educate, help and bring joy to so many.

October 23, 2012 - 9:22 am

Amory - What a beautiful collection!
Thank you for the inspiration.

October 23, 2012 - 10:12 am

Suzanne McKee - Amanda,
You have been so blessed with your gift of photography and now you are blessing so many others. Your ability to see and capture the essence of each person through the camera’s lens is truly amazing. Thank you for opening everyone’s eyes to the beauty of each individual, created and wonderfully made by God. You bring love, joy and such a sense of purpose and hope to us all. May you find inner peace knowing you are a treasured instrument of healing and love in this world. Thank you.

October 23, 2012 - 5:21 pm

Angela Perkins - Wow! Amanda!! This truly takes my breath away!!! Thank you so much for all of the time and effort you put into these campaigns!

October 23, 2012 - 9:06 pm

Patricia Lawrenson - Amanda, your journey and illustrating is inspiring, beautiful, and emotional. I have not let Spina Bifida define me.
Thank You

October 23, 2012 - 9:17 pm

Patricia Lawrenson - Amanda, thank you for sharing your beautiful, emotional and inspiring journey. We will not let Spina Bifida define us, we will define it with the help from people like you and those around us. knowledge is the key, it can open many doors.

October 23, 2012 - 9:41 pm

Lisa - Wow! This is amazing! I am 41 with SB! Thank you for sharing! This should show awareness to the world!

October 25, 2012 - 12:25 am

Sandra Hickey - Wow, this is absolutely beautiful. You have captured the essence of how small a part of a life Spina Bifida is as represented by the small(ish) scar on the babies back, to me anyway. This mark, to me represents that Spina Bifida is not this huge all encompassing diagnosis of gloom and doom the medical profession try to make it out to be. The scar on the lower back is a unique stamp of belonging, to an amazing group of people, who are connected to a larger courageous, fun and happy family. Thankyou

October 26, 2012 - 9:03 pm

Cindy - I love it! My daughter has Spina Bifida. I wish we had a better campaign here in West Michigan.

October 28, 2012 - 7:27 am

Missy Craig - Dearest Amanda,
There is no doubt that God’s purpose is strong in this campaign. My sister, Suzanne McKee, shared this with me. As a neonatal nurse I have taken care of many children with spina bifida. I have no doubt that you had divine inspiration from the moment you received Chance’s diagnosis and listened to your heart (God’s voice)in developing this campaign. I ditto what my sister said in her previous comment….God bless you for using your talents in such a way. I will share this with others, with sincere thanks!

October 28, 2012 - 5:25 pm

sally spencer - Thank you so much…your love and purpose shines so brightly. An inspiration to everyone.


“You never know how strong you are until being strong is the only choice you have.” ~anonymous Times have been busy and I’m anxious to share a lot of new work in the week ahead. With it being spina bifida awareness month, I prolonged sharing my favorite photos from Yadiel’s session so that you all […]

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June 17, 2015 - 1:53 pm

Linda - Unfortunately, it’s not just in other cultures. There were still some parts of the US that were pniushg for nontreatment when I was born. (I’m only 25.) In fact, when I was born, my mother’s doctors were all encouraging her to give me up to the institution because I probably won’t live long anyway. They told my mother, who had been hoping for a baby for 5 years and had just had an emergency C-section to save the precious life within, to just give me up because I wouldn’t amount to anything and would be dead before my 10th birthday anyway. My mom, being the wonderful stubborn woman that she is, told the doctor where to stick it and that she would just have to do the best she could raising me. I’m 25, a college graduate with a driver’s license, a wonderful job, and a loving boyfriend (who will hopefully be a loving fiance9e sometime soon).

Blogging for Good for the Spina Bifida Association of Central Florida

“The good you do today, people will often forget tomorrow; Do good anyway.” ~Mother Teresa I learned earlier this year that the folks leading the Central Florida Blogger Conference would be supporting the Spina Bifida Association of Central Florida in a “blogging for good” initiative they were going to do at this year’s conference. Throughout […]

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