Author Archives: Amanda Kern

Chance’s 2nd spina bifida clinic

“Sometimes not being in control is the most beautiful thing in the world.” ~unknown As I’ve fallen a little complacent in updating my blog lately I’ve had some of you wondering how things are going. Life has been busy. Crazy. And full of…well, life. With Chance going through so many medical moments this past year...

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February 1, 2012 - 9:42 am

Kimberlee Garver - I am a social worker at a spina bifida clinic in Syracuse NY. I was wondering about the spina bifida redefined ribbon shirt. Where did you get those? I was encouraged by your blog and plan to share it in our spina bifida newsletter. Thanks for sharing.

What I vow to do in 2012

“You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You must do the thing which you think you cannot do.” ~Eleanor Roosevelt We’re only hours away from celebrating a new year. I’m thankful that we’ve reached the end of 2011. The year has been...

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January 1, 2012 - 3:34 am

Elaine - You, and Chance, are already great inspiration to many people; I think what you are planning will hopefully challenge many people to dig down a little deeper for more inner strength to not just endure, but to live life to the fullest! Good Luck! I know you will reach your goal!

January 8, 2012 - 5:09 pm

Ella Konopacki - Hi Amanda,

you are very insprational and I would love to support you if there is a way for me to do so. You and your family are in my thoughts a lot, especially now that I am pregnant again myself.

Kisses for little Chance and hi to your family.

Ella, Daniel, Mateo and little button in mama’s belly

Autumn

This past week I got to meet Francesco & Heidi’s brand new little girl, Autumn. She was born only about a week before Christmas and I met her at just five days old. Adorable. Precious. Danty…and yes, perfect. I adored every moment spending time with this little peanut…I think you all will agree she’s beautiful....

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February 1, 2012 - 9:46 am

Kimberlee Garver - Those pictures are amazing! What a gift to Autumn’s parents.

A few new things for Chance…

My baby boy is now just over ten months old and seems to be changing so much lately. Boy do I miss him being brand spankin’ new but I tell you what…it’s a treat to see how much he’s growing into such a charming little boy. This past month has brought a lot of new...

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December 28, 2011 - 11:14 am

heather herron - hes soooooo adorable! So glad he is doing so great! You always have THE BEST photos!

December 28, 2011 - 1:42 pm

Shanna Burgoyne - I love him! He is so cute! I am extremely sad that I have not met him in person yet! I’m not even gonna set a date anymore cause it never seems to works out just know that you are always in my thoughts and I love sharing his spirit through your pictures!

2011 Holiday cards + an update

“Count your blessings this holiday season…and always.” Now that Christmas has come to an end…I thought I’d take a moment to share a long overdue update on my blog. We celebrated Christmas…and felt a little more blessed to have this little guy celebrating his very first Christmas…at home! Yes, I say that quite happily because...

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December 28, 2011 - 1:45 pm

Colette - Beautiful!!!

January 31, 2012 - 11:22 am

Denise - Please keep your positive outlook for Chance. His future is wide open and filled with many possibilities. I know because 27 years ago my son, Ryan, was born with Spina Bifida. He is currently a PhD student at Loyola University in Chicago. His goal is to be a college professor. When he was born they told us he would have learning disabilities – wwll he has proven many people wrong over the years. His best attribute is his positive attitude, he lets nothing keep him down!

I have clung to Jerimiah 29:ll throughout Ryan’s life – “for I know the plans I have for you declares the Lord . . . plans to give you hope and a future”

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