Category Archives: spina bifida


  Chance turned three this past month. Most who have kept up with our updates know we spent his birthday in the hospital and most of the past month seems to have been filled with appointments and tests. I wanted to take a moment to finally share an update with you all. Appointments…that’s consumed a […]

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March 8, 2014 - 4:05 pm

Mary Jane Jones - I have always loved your photography but when I read these posts, the admiration of your strength and love for your family grows by leaps and bounds. Your family is truly am inspiration to everyone.

Kennedy: Another spina bifida miracle

Nearly 3 years ago I knew spina bifida was about to change my life, but I didn’t quite realize just how much of an impact it would make…not just on my and my family’s lives but on the lives of so many others. This silly little idea to capture moments with other families affected by […]

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January 30, 2014 - 9:44 am

Matt - Amanda, what a talented photographer you are. Of course, you’re only as good as the subject :) What wonderful shots you got of some of my favorite people in the world. And such a beautiful girl who is lucky to have such great parents! Love this!

2013 Spina Bifida awareness campaign

  “You were born with the ability to change someone’s life, don’t ever waste it.” I’ve been pouring a lot of my heart into this year’s spina bifida awareness campaign for the Spina bifida association of Central Florida and am excited to finally be at a point to share the final campaign for 2013. I […]

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October 21, 2013 - 6:45 pm

Stefanie - Outstanding!!!

creating awareness of spina bifida

“No one has ever become poor by giving.” ~Anne Frank So if you’ve been connected to me on social media you may have heard that last night we were featured on our local channel 13 news. There’s no video online but they did share this article on their web site… I’ve had a ton of […]

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Chance’s super powers

  “It’s your reaction to adversity, not the adversity itself, that determines how your life’s story will develop.” ~Dieter Uchtdorf Just over a week ago Chance underwent his 12th surgery, a chiari decompression surgery. Before his surgery and in the first hours following his surgery we were incredibly worried. We’ve heard from families who also […]

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November 26, 2013 - 11:12 am

Stacey - I am so glad to hear Chance had a speedy recovery. This post brought tears to my eyes and joy to my heart. I know the love you have for Chance because I have the same immense love for my Beau. Our children are lucky to have us and our lives wouldn’t be as sweet without these precious gifts.

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