Category Archives: spina bifida

2014 Spina Bifida Awareness Campaign

“What counts in life is not the mere fact that we have lived. It is the differences we have made to the lives of others that will determine the signficance of the life we lead.” ~Nelson Mandela For the 4th year I am excited to share this year’s spina bifida awareness campaign for the Spina […]

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Ajala: Another beautiful baby born with spina bifida

“When you refuse to hide your scars they become a lighthouse for someone else.” ~Jon Acuff More than a month ago I was informed that a family in central Florida was blessed with a baby girl, Ajala, born with spina bifida. Since our son Chance was born with spina bifida I’ve spent a considerable amount […]

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What this wheelchair means

My dearest Chance Matthew, This week you got your first wheelchair. I write you as I am still coping with the thoughts of what this means for you and for our family. In the past few months we have struggled with this decision – to give in and request a wheelchair for you. Before you were […]

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May 29, 2014 - 8:53 pm

Amory Anderson - So beautifully said.
Couldn’t agree more!
Been there, too, mama :)

May 29, 2014 - 9:02 pm

Susie - Don’t ever give up parents!!!! I am 52 years old and I use a wheelchair. I was born with myelomingocele. She can do this!!!!! YOU can too!!!!!! :)!!!!! Using a wheelchair is not a death sentence but freedom!!!!! God gave us this. NOONE knows why, but it is doable!!! YOU ARE all in my prayers.

May 29, 2014 - 11:39 pm

Kristen Gilbert - This so where we are at right now with our 3 year old Nathan. The struggles and amount of work put into learning to walk is something many do not understand. I so feel every word you wrote. I have felt all of those same feelings. Thanks for posting!

Three

  Chance turned three this past month. Most who have kept up with our updates know we spent his birthday in the hospital and most of the past month seems to have been filled with appointments and tests. I wanted to take a moment to finally share an update with you all. Appointments…that’s consumed a […]

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March 8, 2014 - 4:05 pm

Mary Jane Jones - I have always loved your photography but when I read these posts, the admiration of your strength and love for your family grows by leaps and bounds. Your family is truly am inspiration to everyone.

Kennedy: Another spina bifida miracle

Nearly 3 years ago I knew spina bifida was about to change my life, but I didn’t quite realize just how much of an impact it would make…not just on my and my family’s lives but on the lives of so many others. This silly little idea to capture moments with other families affected by […]

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January 30, 2014 - 9:44 am

Matt - Amanda, what a talented photographer you are. Of course, you’re only as good as the subject :) What wonderful shots you got of some of my favorite people in the world. And such a beautiful girl who is lucky to have such great parents! Love this!

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