Category Archives: spina bifida

To the mother who is considering aborting her baby with spina bifida

Over four years ago when we considered giving up on our son Chance’s life, I wrote openly about the emotions and decisions we were faced with. In part it helped me cope but I also did so for support. Instead, majority of the responses lead an attack that helped me realize just how touchy of […]

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Continuing to live with the uncertainties of spina bifida

It seems like forever since I’ve shared an update about Chance on my blog. I know so many of you care about our boy given all the things he’s been through. Periodically I have tried to share brief updates on facebook, twitter and instagram – but they don’t compare to the update I am long […]

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2014 Spina Bifida Awareness Campaign

“What counts in life is not the mere fact that we have lived. It is the differences we have made to the lives of others that will determine the signficance of the life we lead.” ~Nelson Mandela For the 4th year I am excited to share this year’s spina bifida awareness campaign for the Spina […]

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February 6, 2015 - 12:41 pm

Bailey - Babies with Spina Bifida makes me want to cry.

Ajala: Another beautiful baby born with spina bifida

“When you refuse to hide your scars they become a lighthouse for someone else.” ~Jon Acuff More than a month ago I was informed that a family in central Florida was blessed with a baby girl, Ajala, born with spina bifida. Since our son Chance was born with spina bifida I’ve spent a considerable amount […]

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What this wheelchair means

My dearest Chance Matthew, This week you got your first wheelchair. I write you as I am still coping with the thoughts of what this means for you and for our family. In the past few months we have struggled with this decision – to give in and request a wheelchair for you. Before you were […]

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May 29, 2014 - 8:53 pm

Amory Anderson - So beautifully said.
Couldn’t agree more!
Been there, too, mama :)

May 29, 2014 - 9:02 pm

Susie - Don’t ever give up parents!!!! I am 52 years old and I use a wheelchair. I was born with myelomingocele. She can do this!!!!! YOU can too!!!!!! :)!!!!! Using a wheelchair is not a death sentence but freedom!!!!! God gave us this. NOONE knows why, but it is doable!!! YOU ARE all in my prayers.

May 29, 2014 - 11:39 pm

Kristen Gilbert - This so where we are at right now with our 3 year old Nathan. The struggles and amount of work put into learning to walk is something many do not understand. I so feel every word you wrote. I have felt all of those same feelings. Thanks for posting!

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