Monthly Archives: July 2011

surgery number eight

“Even heroes have the right to bleed” ~Superman, Five for Fighting Eight. Eight surgeries for my five month old baby boy. It’s a surreal feeling…and I admit we’re all still in disbelief. Chance is in surgery at the moment to have his shunt revised again. We can’t keep up with the number of people calling, […]

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August 2, 2011 - 11:38 pm

Nicole Summers - So sorry to read about this latest revision. I hope the second catheter will help. My daughter has had 4 revisions so I know how very scary this all is.

Sending lots of prayers for a speedy recovery,


surgery number seven

“Everything in life is luck.” ~Donald Trump Luck. Something that seems to always work against me & my family. As luck might have it…I find myself posting another update from the hospital as my baby boy has went through yet another surgery. Surgery number seven. Seven is thought to be a lucky number…for everyone except […]

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July 31, 2011 - 12:11 pm

Betsy - Amanda – just wanted you to know I’m praying for your little boy & you.

July 31, 2011 - 3:50 pm

Lora - I can only imagine how heartbreaking this has been for you. Chance is very lucky to have you as him mom and a family that loves him more than anything. Please know that we continue to pray for you guys.

July 31, 2011 - 4:07 pm

Randi Williams - Our Patricia has had only one shunt malfunction in her first 15 months, so I don’t know what you are going through, but my thoughts are with you. It sounds like you have a lot of people around you for support, but if you need to get in touch with another mom of a child with Spina Bifida, I am here.

July 31, 2011 - 4:37 pm

Lisa - Whatever you need, let us know.

August 1, 2011 - 9:36 pm

Elizabeth - What state are ya’ll from? I have SB and hydrocephales. My prayers are going up for you and your family. Stay strong God always has a plan! Jeremiah 29:11.

The last 48 hours

“The most beautiful people we have known are those who have known defeat, known suffering, known struggle, known loss, and have found their way out of the depths.” ~Elisabeth Kubler-Ross What a whirlwind this week has been. Typically this week is one of the busier weeks of the year for me as we’ve approached final […]

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July 31, 2011 - 1:29 pm

Heather - your LO is soooo adorable!…you are truley a strong woman! my daughter has Sb herself she is now 2years old and im so lucky that she has only needed but one surgery after her birth! KEEP FAITH and stay strong! ps i love all ur pix they really grab the moments

surgery number six

“God places the heaviest burden on those who can carry its weight.” ~Reggie White I know it has come as a bit of shock to many of you to wake up this morning and learn that my baby boy has went through with his sixth surgery. It all happened quite fast, and I suppose it’s […]

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July 28, 2011 - 10:45 am

Kim - Praying he recovers quickly, and you can all go home and get some much needed rest. Those all nighters can really wear you out. Thanks for the update!

July 28, 2011 - 11:04 am

Ann O - You and your family are in my prayers!
How unfortunate to see a little baby go thru so many surgeries. I know it’s so hard on Mom and Dad.

July 28, 2011 - 2:15 pm

Angela - What a trooper…there is nothing Super Chance can’t overcome. Sending prayers for a speedy recovery.

July 28, 2011 - 2:29 pm

Melanie D. - You did good Mom – you caught it right away and got him the help he needed immediately! Keep your chin up – I know how tired you are and how the “rollercoaster” REALLY stinks…from a fellow SB Mom who has been there…

A few tests for my tough guy

This is the week Chance had schedule to undergo follow tests to check in on how he’s doing with some things with his spina bifida. We were suppose to spend time Friday doing these tests but apparently there were conflicts in scheduling and at the last minute we realized we had no other option but […]

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July 26, 2011 - 10:22 pm

Shauna Bruce-Hamburger - Hi Amanda! I found one of your blog entries through a mutual friend on facebook and I just wanted to tell you I love all of your amazing and wonderful pictures and your blog entries. Your son is absolutely ADORABLE!!! I think I read in one of your posts that you did not know many adults with spina bifida. So-I have been wanting to reach out to you to let you know I was also born with spina bifida (myelomeningocele) and I would love to connect more with you if you would like. I am 36. I would be more than happy to answer any questions you may have for me. I also wrote a book called “Beyond Adversity into Freedom” which is my story of how I have found genuine freedom and joy in living with spina bifida. If you ever wanted to review my book on your blog-I would be more than happy to send you one. Thank you again for the beautiful blog and pictures. Many Blessings, Shauna

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