A few tests for my tough guy

This is the week Chance had schedule to undergo follow tests to check in on how he’s doing with some things with his spina bifida. We were suppose to spend time Friday doing these tests but apparently there were conflicts in scheduling and at the last minute we realized we had no other option but to get them out of the way today. That left me taking my tough guy to the hospital this morning. Here was just before we left…yes, the look on his face just says to me “lets go get this mess over with!”  …as if it was anything in comparison to some of the things he’s already been through.

He had to undergo an MRI where he was sedated in order for them to capture images of his spine and brain to check on how he was doing with his spina bifida, hydrocephalus, and shunt. They took him from me for about an hour and a half and finally I got to go back to be with him once he woke up. This was just a moment after I greeted him…he was still a little drowsy. Bless his little heart…he once again was a hard “stick” for them to put in an IV. He has marks on each foot and hand. Yes, there’s no doubt he is my child.:)But he did well.

Of course he knows the sound of the click of my camera shutter…he became more alert quickly after I took a photo. Poor little guy hadn’t eaten anything since close to 2am so he woke up shortly after this begging to be fed.

Afterwards we went to have him undergo an ultrasound that I got to be in the room for. They took images of his kidneys and bladder to check on how they were doing. He was so awesome.

It was a long morning…but these tests were only a small challenge for my tough guy. I don’t know who was happier to head home afterwards.

We won’t find out the results of the tests until August 5th when we go to the spina bifida clinic to meet with several doctors. Until then we’ll keep our fingers crossed and say our prayers.

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July 26, 2011 - 10:22 pm

Shauna Bruce-Hamburger - Hi Amanda! I found one of your blog entries through a mutual friend on facebook and I just wanted to tell you I love all of your amazing and wonderful pictures and your blog entries. Your son is absolutely ADORABLE!!! I think I read in one of your posts that you did not know many adults with spina bifida. So-I have been wanting to reach out to you to let you know I was also born with spina bifida (myelomeningocele) and I would love to connect more with you if you would like. I am 36. I would be more than happy to answer any questions you may have for me. I also wrote a book called “Beyond Adversity into Freedom” which is my story of how I have found genuine freedom and joy in living with spina bifida. If you ever wanted to review my book on your blog-I would be more than happy to send you one. Thank you again for the beautiful blog and pictures. Many Blessings, Shauna

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