Author Archives: Amanda Kern

Super Chance turns 1.

“Consider it pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance. Perseverance must finish its work so that you may be mature and complete, not lacking anything. If any of you lacks wisdom, he should ask God, who gives generously to all...

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February 22, 2012 - 7:52 pm

Leslie Blumer - Amanda, I think I found you on FB nearly a year ago and I’ve been following Chance’s story since then. I cried when I read this. Happy tears. :} Happy birthday to your son! I know that he’ll walk someday because he has an entire family behind him encouraging him. <3 Keep your posts coming. I love hearing about how he's doing and how strong he's becoming. :)

February 23, 2012 - 1:13 pm

Melinda Mumford - You have a Beautiful Family! Chance is a precious little guy! Glad his first Birthday was Great! And your photos are great too! So happy for all of you!

February 24, 2012 - 11:13 am

Josh Murdock - Super cute! Super Chance is one awesome little guy. I’m glad he could enjoy a Yum Yum Cupcake for his 1st Birthday! You need to share it with them on Twitter for sure!

March 5, 2012 - 3:42 pm

Michelle Peacock - I love this post! He is so cute!

March 25, 2012 - 11:27 pm

Ella Konopacki - Happy 1st Birthday Chance

From Daniel, Ella, Mateo and baby button in belly

Sweet little Sophia

This past week I got to meet little Sophia & her family for newborn photos. She’s one of a handful of newborns I’ve had on my calendar to photograph this year and so we’ve all been anxiously awaiting her arrival. She’s one of the more content newborns I’ve ever photographed so she made it that...

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Chance’s 2nd spina bifida clinic

“Sometimes not being in control is the most beautiful thing in the world.” ~unknown As I’ve fallen a little complacent in updating my blog lately I’ve had some of you wondering how things are going. Life has been busy. Crazy. And full of…well, life. With Chance going through so many medical moments this past year...

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February 1, 2012 - 9:42 am

Kimberlee Garver - I am a social worker at a spina bifida clinic in Syracuse NY. I was wondering about the spina bifida redefined ribbon shirt. Where did you get those? I was encouraged by your blog and plan to share it in our spina bifida newsletter. Thanks for sharing.

February 9, 2012 - 7:19 pm

John - Hey! We’re putting on an online live Q&A with Dr. Levitt from Cincinnati Children’s Hospital about fecal incontinence related to spina bifida, on February 22nd, 2012 at 7:00pm ET. If you’d like to participate in the event, you can RSVP here: http://www.eventbrite.com/event/2912706985. If you’re interested in hosting the event on your site or blog and would like some more info, please contact me, John Martin at john (at) partnershub.com. Thanks!

What I vow to do in 2012

“You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You must do the thing which you think you cannot do.” ~Eleanor Roosevelt We’re only hours away from celebrating a new year. I’m thankful that we’ve reached the end of 2011. The year has been...

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January 1, 2012 - 3:34 am

Elaine - You, and Chance, are already great inspiration to many people; I think what you are planning will hopefully challenge many people to dig down a little deeper for more inner strength to not just endure, but to live life to the fullest! Good Luck! I know you will reach your goal!

January 8, 2012 - 5:09 pm

Ella Konopacki - Hi Amanda,

you are very insprational and I would love to support you if there is a way for me to do so. You and your family are in my thoughts a lot, especially now that I am pregnant again myself.

Kisses for little Chance and hi to your family.

Ella, Daniel, Mateo and little button in mama’s belly

Autumn

This past week I got to meet Francesco & Heidi’s brand new little girl, Autumn. She was born only about a week before Christmas and I met her at just five days old. Adorable. Precious. Danty…and yes, perfect. I adored every moment spending time with this little peanut…I think you all will agree she’s beautiful....

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February 1, 2012 - 9:46 am

Kimberlee Garver - Those pictures are amazing! What a gift to Autumn’s parents.

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