Category Archives: Family

Ready. Set. Go.

“Half our life is spent trying to find something to do with the time we have rushed through life trying to save.” ~Will Smith The summer has flashed before my eyes…again. Not so sure how that happened…seems like every year it flies by even faster. Here I am nearing the end of my break between […]

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August 23, 2011 - 5:03 pm

Pepper - Amanda, honey, these are great.

Another shunt dilemma

“Reality is that which, when you stop believing in it, doesn’t go away.” ~ Philip K. Dick I know many of you have been waiting most of the day for an update since I brought Chance to the E.R. It’s been a crazy day and I’m finally finding a moment to share just how hectic […]

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August 21, 2011 - 10:15 am

Shanna Burgoyne - Love you, so happy everything is somewhat okay! I love the picture of Jaylen and Chance, one of my favorites!

August 21, 2011 - 11:21 pm

Joyia - I think you’re the only person that could ever take absolutely beautiful pictures even in a hospital! Amazing. And I’m very glad to hear that Chance is doing ok.

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Here I am.

What a week it’s been. This time last week I was getting ready for surgery thinking it wouldn’t be that big of a deal…here I am a week later. It’s been a much tougher week than I imagined it would have been. I’m finally getting a little caught up with things…like photos. I posted photos […]

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August 17, 2011 - 1:39 pm

Emily - At 19 weeks pregnant I had my ultrasound and was ecstatic to find out we were having a baby boy. But then I was crushed to find out our little boy had a neural tube defect. Not knowing anything about Spina Bifida or Hydrocephalus my mind went to the worst place possible. In doing online research my mother-in-law stumbled upon your website. I read your blog like a freak. Your and Chances story really gave me something to rely on. And really let me know what to expect, which I believe is very important because I had no idea what we were about to experience. My little champ will be 4 months at at the end of the month. He has been through 3 surgeries (one on his back and two shunt surgeries). He has great movement in his legs and feet and at our last Dr appointment they said his muscle tone was also great and he would exceed all our expectations. I am very hopeful for our little guy. So to show a tiny bit of my appreciation for you sharing your story with the world I voted for you. I cant thank you enough for giving me hope for my little boy. Thank you, Emily

Update after surgery

“Things pass, and the best we can do is to let them really go away.” ~Paul Coelho I’ve made it past another surgery. Yesterday was a bit of a blur and I definitely wasnt in any shape to be updating anyone by phone, email or my blog…so my apologies to those of you waiting for […]

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August 11, 2011 - 10:26 am

Amanda - Miss Amanda, you’ve once again shown a remarkable resilience. You always seem to come back to center. Thinkin’ about you, lady and hope you’re feeling well soon!!

August 11, 2011 - 11:22 am

Lisa - Hang in there – hugs and strength.

August 12, 2011 - 1:48 am

Jessica Robinson - Amanda,
I am so thankful your surgery went well! I hope the pain takes a hike somewhere else too! Thanks for keeping us updated. Rest well.
*Hugs*
Jessica

Chance’s 1st spina bifida clinic

“Fear defeats more people than any other one thing in the world.” ~ Ralph Waldo Emerson Since just before Chance left the NICU back in March we’ve been anticipating this day. Admittedly the anticipation came with a mix of hopes and fears. We are quite fortunate to live in Orlando so close and are able […]

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August 8, 2011 - 10:27 am

Kim - I teared up reading your post. I remember so well our first clinic evaluation, and the fears and hopes I walked in with. They also told me that Madison would walk, and I cried right there with relief for so many concerns that I had been reassured about. Yes, we have issues, but we also have hope and anticipation of wonderful things to come!

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