Photographer, Educator, Student, Mother & Wife Obsessed with sharing moments through pictures & words
“Reality is that which, when you stop believing in it, doesn’t go away.” ~ Philip K. Dick I know many of you have been waiting most of the day for an update since I brought Chance to the E.R. It’s been a crazy day and I’m finally finding a moment to share just how hectic […]
Love you, so happy everything is somewhat okay! I love the picture of Jaylen and Chance, one of my favorites!
I think you’re the only person that could ever take absolutely beautiful pictures even in a hospital! Amazing. And I’m very glad to hear that Chance is doing ok.
I just came out today from ER and its the exact same thing they told me my babys ventriculs are much smaller then the last time we went in to get a vp shunt replacement he has swen also thats why i took him
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What a week it’s been. This time last week I was getting ready for surgery thinking it wouldn’t be that big of a deal…here I am a week later. It’s been a much tougher week than I imagined it would have been. I’m finally getting a little caught up with things…like photos. I posted photos […]
by Amanda Kern
1 comment
At 19 weeks pregnant I had my ultrasound and was ecstatic to find out we were having a baby boy. But then I was crushed to find out our little boy had a neural tube defect. Not knowing anything about Spina Bifida or Hydrocephalus my mind went to the worst place possible. In doing online research my mother-in-law stumbled upon your website. I read your blog like a freak. Your and Chances story really gave me something to rely on. And really let me know what to expect, which I believe is very important because I had no idea what we were about to experience. My little champ will be 4 months at at the end of the month. He has been through 3 surgeries (one on his back and two shunt surgeries). He has great movement in his legs and feet and at our last Dr appointment they said his muscle tone was also great and he would exceed all our expectations. I am very hopeful for our little guy. So to show a tiny bit of my appreciation for you sharing your story with the world I voted for you. I cant thank you enough for giving me hope for my little boy. Thank you, Emily
“Things pass, and the best we can do is to let them really go away.” ~Paul Coelho I’ve made it past another surgery. Yesterday was a bit of a blur and I definitely wasnt in any shape to be updating anyone by phone, email or my blog…so my apologies to those of you waiting for […]
by Amanda Kern
3 comments
Miss Amanda, you’ve once again shown a remarkable resilience. You always seem to come back to center. Thinkin’ about you, lady and hope you’re feeling well soon!!
Hang in there – hugs and strength.
Amanda,
I am so thankful your surgery went well! I hope the pain takes a hike somewhere else too! Thanks for keeping us updated. Rest well.
*Hugs*
Jessica
“Everything in life is luck.” ~Donald Trump Luck. Something that seems to always work against me & my family. As luck might have it…I find myself posting another update from the hospital as my baby boy has went through yet another surgery. Surgery number seven. Seven is thought to be a lucky number…for everyone except […]
by Amanda Kern
5 comments
Amanda – just wanted you to know I’m praying for your little boy & you.
I can only imagine how heartbreaking this has been for you. Chance is very lucky to have you as him mom and a family that loves him more than anything. Please know that we continue to pray for you guys.
Our Patricia has had only one shunt malfunction in her first 15 months, so I don’t know what you are going through, but my thoughts are with you. It sounds like you have a lot of people around you for support, but if you need to get in touch with another mom of a child with Spina Bifida, I am here.
Randi
Whatever you need, let us know.
What state are ya’ll from? I have SB and hydrocephales. My prayers are going up for you and your family. Stay strong God always has a plan! Jeremiah 29:11.
“The most beautiful people we have known are those who have known defeat, known suffering, known struggle, known loss, and have found their way out of the depths.” ~Elisabeth Kubler-Ross What a whirlwind this week has been. Typically this week is one of the busier weeks of the year for me as we’ve approached final […]
by Amanda Kern
1 comment
your LO is soooo adorable!…you are truley a strong woman! my daughter has Sb herself she is now 2years old and im so lucky that she has only needed but one surgery after her birth! KEEP FAITH and stay strong! ps i love all ur pix they really grab the moments
by Amanda Kern
13 comments