Photographer, Educator, Student, Mother & Wife Obsessed with sharing moments through pictures & words
“Believe you can and you’re halfway there.” ~Theodore Roosevelt I’m so excited to finally get to share a few moments from Chance’s physical therapy at Arnold Palmer Hospital. He’s been going through therapy one day a week since the beginning of last December and it’s been torture for me to take him and not be […]
“Too often we underestimate the power of a touch, a smile, a kind word, a listening ear, an honest compliment, or the smallest act of caring, all of which have the potential to turn a life around.” -Leo Buscaglia Meet my little friend Jackson, one of the few people who joined us on Team Chance […]
by Amanda Kern
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And if you want to remember the time when the much-missed superstar ruled the charts, watch our round up of Michael Jackson’s Top 15 moments on video.
It’s hard to believe that in just over a day the Walk-N-Roll for spina bifida here in Central Florida will be here! Because I’m leading Chance’s team and I know a lot of others out there who are a part of the spina bifida community may be following my blog, I wanted to share an […]
by Amanda Kern
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It’s hard to believe it’s been nearly two years since I photographed my little friend Cleary as a newborn. Cleary’s baby sister Ellie was born recently and I went to visit them to take her newborn photos and a few pictures with their family. I’ve been incredibly busy so I’m finally getting an opportunity to […]
by Amanda Kern
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“You can make plans, but the Lord’s purpose will always prevail.” ~Proverbs 19:21 I know I have quite a few people anxious to see some of what I’ve been working on for part of the last month and a half. I’m quite excited to finally share the entire 2012 spina bifida awareness campaign that I’ve […]
by Amanda Kern
42 comments
God bless you Amanda Kern for illustrating so beautifully that these children and adults are not defined by a diagnosis. I am so grateful that you are so transparent in the words you use to describe your journey. I choke up looking at the photos as I know so many of these incredible individuals and know many challenges they’ve endured. Thank you for using your incredible talents to educate, help and bring joy to so many.
What a beautiful collection!
Thank you for the inspiration.
Amanda,
You have been so blessed with your gift of photography and now you are blessing so many others. Your ability to see and capture the essence of each person through the camera’s lens is truly amazing. Thank you for opening everyone’s eyes to the beauty of each individual, created and wonderfully made by God. You bring love, joy and such a sense of purpose and hope to us all. May you find inner peace knowing you are a treasured instrument of healing and love in this world. Thank you.
Wow! Amanda!! This truly takes my breath away!!! Thank you so much for all of the time and effort you put into these campaigns!
Amanda, your journey and illustrating is inspiring, beautiful, and emotional. I have not let Spina Bifida define me.
Thank You
Amanda, thank you for sharing your beautiful, emotional and inspiring journey. We will not let Spina Bifida define us, we will define it with the help from people like you and those around us. knowledge is the key, it can open many doors.
Wow! This is amazing! I am 41 with SB! Thank you for sharing! This should show awareness to the world!
Wow, this is absolutely beautiful. You have captured the essence of how small a part of a life Spina Bifida is as represented by the small(ish) scar on the babies back, to me anyway. This mark, to me represents that Spina Bifida is not this huge all encompassing diagnosis of gloom and doom the medical profession try to make it out to be. The scar on the lower back is a unique stamp of belonging, to an amazing group of people, who are connected to a larger courageous, fun and happy family. Thankyou
I love it! My daughter has Spina Bifida. I wish we had a better campaign here in West Michigan.
Dearest Amanda,
There is no doubt that God’s purpose is strong in this campaign. My sister, Suzanne McKee, shared this with me. As a neonatal nurse I have taken care of many children with spina bifida. I have no doubt that you had divine inspiration from the moment you received Chance’s diagnosis and listened to your heart (God’s voice)in developing this campaign. I ditto what my sister said in her previous comment….God bless you for using your talents in such a way. I will share this with others, with sincere thanks!
Thank you so much…your love and purpose shines so brightly. An inspiration to everyone.
All these pictures are so beautiful. I am a Mamaw to an amazing 3 month old boy with spina bifida, he is my first grandchild and my first born daughters first child. I am not his guardian but my daughters husband works nights and sleep during the day so my daughter and I have been the ones tag teaming it in taking care of her son and trying to research all we can on Spina bifida. Since I am just the “grandma” many talkingforum groups out there refuse admittance to me, so finding someone else who wil talk with me about his birth defect is next to impossible. I would love it if you would reach out to me and we could maybe message a bit.
God Bless You
Samantha Cox
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by Amanda Kern
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