“When you refuse to hide your scars they become a lighthouse for someone else.” ~Jon Acuff More than a month ago I was informed that a family in central Florida was blessed with a baby girl, Ajala, born with spina bifida. Since our son Chance was born with spina bifida I’ve spent a considerable amount […]
Category Archives: spina bifida
My dearest Chance Matthew, This week you got your first wheelchair. I write you as I am still coping with the thoughts of what this means for you and for our family. In the past few months we have struggled with this decision – to give in and request a wheelchair for you. Before you were […]
by Amanda Kern
3 comments
Couldn’t agree more!
Been there, too, mama
Don’t ever give up parents!!!! I am 52 years old and I use a wheelchair. I was born with myelomingocele. She can do this!!!!! YOU can too!!!!!! :)!!!!! Using a wheelchair is not a death sentence but freedom!!!!! God gave us this. NOONE knows why, but it is doable!!! YOU ARE all in my prayers.
This so where we are at right now with our 3 year old Nathan. The struggles and amount of work put into learning to walk is something many do not understand. I so feel every word you wrote. I have felt all of those same feelings. Thanks for posting!
Chance turned three this past month. Most who have kept up with our updates know we spent his birthday in the hospital and most of the past month seems to have been filled with appointments and tests. I wanted to take a moment to finally share an update with you all. Appointments…that’s consumed a […]
by Amanda Kern
1 comment
I have always loved your photography but when I read these posts, the admiration of your strength and love for your family grows by leaps and bounds. Your family is truly am inspiration to everyone.
Nearly 3 years ago I knew spina bifida was about to change my life, but I didn’t quite realize just how much of an impact it would make…not just on my and my family’s lives but on the lives of so many others. This silly little idea to capture moments with other families affected by […]
by Amanda Kern
6 comments
Amanda, what a talented photographer you are. Of course, you’re only as good as the subject What wonderful shots you got of some of my favorite people in the world. And such a beautiful girl who is lucky to have such great parents! Love this!
Did she have spina bifida?
Kennedy is SOOO cute????
I meant to put Kennedy is SOOOO cute!!!!!!????
Kennedy is SOOOOO cute!!!!! Is what I meant to put.
What a great photographer you are Amanda! Love thoe pictures of Kennedy!
“You were born with the ability to change someone’s life, don’t ever waste it.” I’ve been pouring a lot of my heart into this year’s spina bifida awareness campaign for the Spina bifida association of Central Florida and am excited to finally be at a point to share the final campaign for 2013. I […]
by Amanda Kern
2 comments
Outstanding!!!
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by Amanda Kern
no comments